United Front: Addressing India's Rare Disease Challenges
Published on: Sept. 30, 2025, 10:46 a.m. | Source: Devdiscourse
The National Hunter Alliance Summit 2025 in New Delhi brought stakeholders together to address the challenges of Hunter Syndrome and other rare diseases. Key issues included funding gaps, inaccessible treatments, and inadequate policy execution. Personal accounts highlighted the emotional and systemic hurdles families face while advocating for change.
